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With increasing advancements in technology, people living with type 1 diabetes are keen to access new systems to reduce the burden of managing the condition and limit diabetes burnout. The slow progress of these technologies by manufacturers has resulted in an exponential increase in ‘do it yourself’ (DIY) looping methods. While the usage of these DIY looping systems are not approved by regulatory bodies, such as the Therapeutic Goods Association (TGA), as health professionals it is critical that we are aware of them to ensure that we provide tailored advice to people living with type 1 diabetes.

In this fascinating presentation, diabetes activist and advocate Renza Scibilia outlines her personal experience in utilising user-led diabetes technology to customise her diabetes care. She explains how she connects her continuous glucose monitor readings to her insulin pump using an App with an algorithm that tailors insulin dosages to essentially replace a functioning pancreas. The result is better sleep, better time in range and reduced diabetes burden.  

Renza also refers to the Diabetes Australia position statement on DIY technology solutions which provides an overview of current technologies and apps for tracking glycaemic control.

While health professionals cannot recommend unapproved products, it is important that individuals using DIY technologies receive the care required to manage the condition and to optimise their health outcomes.

Summary:

• DIY looping is growing in popularity, with users finding it helpful in tracking and managing their blood glucose levels through an app that enables devices to ‘talk to’ each other.
• While research is limited in this area, there is an increasing amount of research being conducted.
• It is important to note that DIY Looping is not TGA approved and thus not able to be currently recommended by health professionals.
• All individuals living with type 1 diabetes have the right to access support and care from health professionals, regardless of their diabetes management. Further information can be found in the Diabetes Australia position statement on DIY looping.

Renza Scibilia has lived with type 1 diabetes since 1998. She is a diabetes advocate and activist and is the Head of Communities and International Affairs at Diabetes Australia. She has worked for diabetes organisations for the last twenty years, promoting a person-centred approach to the development, design and delivery of diabetes technologies, services, resources, research and education programs.

Since August 2017, Renza has been wearing a ‘Do It Yourself Artificial Pancreas System’, which automates insulin delivery and is part of the #WeAreNotWaiting movement. 

Renza has extensive experience as a consultant, facilitator, presenter, and media spokesperson and is frequently invited to speak at conferences where she speaks about topics including peer support in diabetes management, diabetes technology, and why communication matters in diabetes and healthcare. Renza is well-known in the diabetes online community, and is well-versed in social media, its use and impact on people with chronic health conditions and application in peer support. She is the author of Diabetogenic, and a regular contributor to many online and print health publications.

To register for the presentation and associated documents including the assessment quiz click here